At the end of my freshman year I fell very ill and could not
walk. I was confined to a hospital bed and could not move around on my own. As
this was all occurring we had no idea what was happening. The summer was exhausting
learning to walk again beginning with a walker, then crutches, and finally on
my own again. No one will know how much we depend on our body until you lose
something we need every day to function. The journey was painful but I am happy
to say that I can now walk on my own again.
Along with the issues of learning to walk again came the new
tests and treatment solutions while we wait to figure out what my ailments
were. I started taking medicines to block the pain messengers sent to my brain
so that I could not feel the pain I had anymore. That led me to some
personality changes that we all did not agree with so I stopped taking it.
Since then I have continued to experience pain so we have tried new
combinations. I currently take nine medications daily to protect me and make me
feel better enough to function in daily life. They consist of stomach
medicines, pain blockers, personality medicines, allergy pills, and all
different types of vitamins.
We had to wait almost three long years to figure out a
diagnosis for my illness. During this timeframe I have been through many tests.
I have donated over 5 gallons of blood to be tested, spinal taps, stomach
scopes, x-rays, ultrasounds, and many others. I have attended University of Iowa
hospitals and MAYO clinics in Minnesota for treatment. At U of I I was
diagnosed with chronic pain syndrome but this was not the answer to all of my
problems. Once this one piece of the puzzle was figured out I started going to
a physical therapist. He evaluated me and diagnosed me on the spot. He said you
have Ehler Danlos Syndrome. We were then sent to have tests done and I was
confirmed with the disease.
Ehler Danlos Syndrome is a rare genetic disease that gets
passed down to offspring. It makes your immune system attack itself and begins
to break down the body. I found out I had type 3 which was a blessing for me.
If you get type 2 you can have the vascular complications where I don’t. I do
not produce enough collagen that is needed for a healthy body. So I am extra
flexible and can easily make my joints pop out of place. I am more susceptible to
breaks and bruises, scars don’t disappear, and other complications. Along with
these issues I get fatigued very easily so I have to manage my amount of
activity in which I preform in.
I can continue living for right now but in the end I will
need to re evaluate my life because the older you get the more my body will
break down and stop working.